Update From A Beautiful City

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Update From A Beautiful City

Post  Anna's Mom on Sun 25 Dec 2011, 8:01 pm

We are in Philadelphia, spending Christmas here!

Anna had appointments at a well known headache clinic in this city. They want to hospitalize her for a continuous IV Lidocaine infusion, and our insurance approved it! She may get "K" infusion(s) also, but it depends on how the Lidocaine goes.

We are hopeful!

Cheryl



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Re: Update From A Beautiful City

Post  Migrainegirl on Sun 25 Dec 2011, 10:20 pm

Good Lucy Cheryl. I really hope it helps Anna.
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Re: Update From A Beautiful City

Post  milo on Mon 26 Dec 2011, 4:25 pm

Fingers crossed!!!!
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Re: Update From A Beautiful City

Post  Cluelesskitty on Mon 26 Dec 2011, 4:52 pm

Good luck Cheryl, and will keep my fingers crossed tightly !!

Risa


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Re: Update From A Beautiful City

Post  30yrsofheadache on Tue 27 Dec 2011, 9:43 am

Hi, Cheryl. I have been reading your Care page updates. I am so happy to hear Anna will at least be getting the lidocaine infusion. I do hope they will also give her the "K". Sorry you had to spend Christmas in a strange place, but it sounds like you made the best of it. Let us know how it goes tomorrow.
Hugs,
Cindy

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Re: Update From A Beautiful City

Post  Anna's Mom on Thu 29 Dec 2011, 8:36 am

Anna got admitted yesterday afternoon. Everyone is super nice at the hospital. A+ for them.

Anna is getting some other IV meds also. But her head pain went up last night and is very bad this morning. The Lidocaine is a low dose, to start, to make sure her body can handle it. We just have to be patient.

Cheryl


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Re: Update From A Beautiful City

Post  Cluelesskitty on Sat 31 Dec 2011, 3:48 am

How's Anna after the meds? any better I hope?
I am praying for Anna, and for you guys so your anxiety will lessen, particularly your Cheryl for as a mother
I can imagine how painful this is for you seeing Anna suffering so :[

hugs
Risa

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Re: Update From A Beautiful City

Post  Porsche Fan on Sun 01 Jan 2012, 12:48 am

wishing success to guys at jeff.

anyone give you grief, just think of the imaginary "shoulders" behind you........!
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Re: Update From A Beautiful City

Post  Anna's Mom on Sun 01 Jan 2012, 7:03 pm

It is trial and error with the IV meds. I'd like to get it down to just two or three. The Lidocaine was making her super dizzy today. And that increases nausea and head pain. This is very tricky.

We were surrounded by the Mummers Parade today.

Wow.

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Re: Update From A Beautiful City

Post  Cluelesskitty on Sun 01 Jan 2012, 11:52 pm

Oh sorry about that. I understand about trial and error, though. Sometimes it is inevitable to find out what works what not, yeah..
I hope this process will go quickly and Anna will soon have her very needed relief.

Mummers Parade - never heard about that so I looked it up on Google:
http://www.visitphilly.com/events/philadelphia/the-mummers-parade/?gclid=CJSK4obSsK0CFQdjhwodHxwOnA

WOW indeed! what an extravaganza of colors and costumes!
must have been a sight to behold Smile

Risa

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Re: Update From A Beautiful City

Post  Cluelesskitty on Mon 02 Jan 2012, 8:24 pm

I just read Anna's Caring Bridge journal today, and I am so sorry things didn't work as well as you guys hoped for.

Perhaps Dr S will be more helpful, I will pray he will.

Lot of hugs for you guys

Risa

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Re: Update From A Beautiful City

Post  Anna's Mom on Tue 03 Jan 2012, 6:28 pm

That was a good link, Risa. Thanks!

Here is a link to one of the String Bands this year:

http://www.youtube.com/watch?v=db-ewPkXIVg

Still hoping for some treatment that helps. Anna is a really tough case though.

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Re: Update From A Beautiful City

Post  Cluelesskitty on Wed 04 Jan 2012, 7:28 pm

I never lose hope that one day something will be found that helps Anna. I just wish that day came already!!
She suffered enough, poor thing, as of now Sad
I don't know how Anna can withstand all this pain.
The only thing I can think of is, because she has you, Cheryl, and the rest of her family supporting her in such wonderful way.
It's remarkable how you guys stick for each other.

re: String Bands- Cheryl, it's AWESOME!! obviously, in the link you showed me they did the Alice in Wonderland theme.
W-O-W !!! a performance worthy of an Oscar! I was blown away by the professionalism of these guys!

Thanks for the link Cheryl! gotta watch more, it's so great a show Smile


Risa





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Re: Update From A Beautiful City

Post  Anna's Mom on Wed 04 Jan 2012, 9:33 pm

You can do a google search on more String Band performances. I wish you could hear it, but I'm glad you enjoy seeing it! I never heard of the Mummer's Parade until early last week. And then it was a BIG WOW!

We are hanging in there. Staying until next week. Trying a new med that is helping some (shock).

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Re: Update From A Beautiful City

Post  30yrsofheadache on Thu 05 Jan 2012, 8:27 am

Cheryl, I hope that the new med really does some good, or they change their mind about the other IV med.
Hugs,
Cindy

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Re: Update From A Beautiful City

Post  Cluelesskitty on Thu 05 Jan 2012, 5:24 pm

Oh gosh, ohgoshohgosh! I hope dr S will be the one to finally make difference !

Praying he will, Cheryl!

Risa

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