The Fabulous Migraine Underworld
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Wow, so quiet!...

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Post  Cluelesskitty Mon 17 Sep 2012, 8:05 pm

It's been so long since we just chatted here..
how's everybody, hey!

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Post  Porsche Fan Fri 21 Sep 2012, 10:19 pm

hello everyone, kitty.

a lot of stuff going on. not exactly fun. so that's my status.

hope you guys are ok.
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Post  30yrsofheadache Sat 22 Sep 2012, 5:30 am

I have noticed how quiet it is here, too. I am settled into my new house, which I love. We are very close to the mountains and can easily see them from our house. I find that peaceful. Tomorrow I have to drive 8 hours to Rochester, NY for my cousins funeral. She was only 55, but had Pulmonary Hypertension. It will be a touching ceremony as she had 5 boys and I lost count of how many grandchildren.

I hope my head cooperates, but long drives usually are a trigger for me. I also have to pack food for myself since I am gluten free and this is a large Italian family. When I get back, I am going to work on getting my "lollipops" back. I am hating the Morphine IR I am trying instead.

It is an insurance matter-my Dr. is willing to prescribe them for me. They are quite expensive and so far I cant find a pharmacy that will sell them in less than a full box of 30. Last time that lasted 9 months. OK< gotta go find a funeral dress!
Hugs,
Cindy

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Post  777Trinity Sat 22 Sep 2012, 6:17 am

It has been really quiet, either we are all doing much better or the falls weather has knocked everyone out.

I need some energy!
Hope you are doing okay.
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Post  Porsche Fan Sun 23 Sep 2012, 12:05 am

i have a theory that the more quiet the forum gets, the more of us are under the weather or frankly not doing that great. i've had my fair share of challenges lately.

looks like i've done some tendon and nerve damage to both elbows and hands. seeing my ortho surgeon mondy to see what's up. at least, i have 2nd to 3rd degree wrist sprains. also, could fall back into side effects of an anti-biotic that i took 3 rounds of this year that can damage tendons.

visited my cardiologist a couple days ago. the inside joke was "ok, we're here to plan the rest of my life." cardio's says, "well, how about the next week?" i have a great working relationship with this guy. i trust him with my life, and he is one cool character unders stress.

follow up is near christmas and we'll see if it's time to add two more stents or bypass. i see a vascular surgeon next month for some vein abnormalities in my arm.

it's serious business, but we work well together. the cardio says that i'm his mostly closely followed patient. he dictates his notes while you're in the office....one thing i do like to hear "if "porsche fan" has any problems or questions, contact me immediately."

he said to me "porsche fan, you are doing absolutely everything in your power. you are staying positive. you exercise, you take your medicine, and you take interest in your health and medicine." i'm not the patient that comes in after abusing their body for decades.

that's what makes this sh1tty. each visit, each lab work, each test, each procedure you are measuring and projecting your mortality. it's rough. luckily i am resistant to getting the blues or depression. this isn't being flip. i know when i'm not feeling good. i know when i'm more tired and sleeping more. i told my dad....if i didn't recognize these issues, than there's a major problem.

so yes, things are rough. i will emphasize that migraines really, really suck but i think they do in fact "build character." they do make you a tougher person IMO. i might get flak on it, but you'll face it when something comes up in your health that is really out and out nasty.

i've been down that road...so i'm sticking to my story.
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Post  777Trinity Sat 29 Sep 2012, 8:54 am

Porsche Fan wrote:i have a theory that the more quiet the forum gets, the more of us are under the weather or frankly not doing that great. i've had my fair share of challenges lately.

looks like i've done some tendon and nerve damage to both elbows and hands. seeing my ortho surgeon mondy to see what's up. at least, i have 2nd to 3rd degree wrist sprains. also, could fall back into side effects of an anti-biotic that i took 3 rounds of this year that can damage tendons.

visited my cardiologist a couple days ago. the inside joke was "ok, we're here to plan the rest of my life." cardio's says, "well, how about the next week?" i have a great working relationship with this guy. i trust him with my life, and he is one cool character unders stress.

follow up is near christmas and we'll see if it's time to add two more stents or bypass. i see a vascular surgeon next month for some vein abnormalities in my arm.

it's serious business, but we work well together. the cardio says that i'm his mostly closely followed patient. he dictates his notes while you're in the office....one thing i do like to hear "if "porsche fan" has any problems or questions, contact me immediately."

he said to me "porsche fan, you are doing absolutely everything in your power. you are staying positive. you exercise, you take your medicine, and you take interest in your health and medicine." i'm not the patient that comes in after abusing their body for decades.

that's what makes this sh1tty. each visit, each lab work, each test, each procedure you are measuring and projecting your mortality. it's rough. luckily i am resistant to getting the blues or depression. this isn't being flip. i know when i'm not feeling good. i know when i'm more tired and sleeping more. i told my dad....if i didn't recognize these issues, than there's a major problem.

so yes, things are rough. i will emphasize that migraines really, really suck but i think they do in fact "build character." they do make you a tougher person IMO. i might get flak on it, but you'll face it when something comes up in your health that is really out and out nasty.

i've been down that road...so i'm sticking to my story.

Wow!! PF, you have a lot on your plate right now. I like what you said about "building character". There is a scripture in the NT that states the same thing in a sense. That we are not to be surprized when difficulties, challenges and trials come our way, that they build our character and refine us. It doesn't feel like it when we are going through it, but once out the other side it does change us and i think ultimately for the better.

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Post  Cluelesskitty Mon 01 Oct 2012, 4:57 pm

I'd really could use a break from all that "character building", to be honest, grrrr

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Post  kimsmom Thu 04 Oct 2012, 7:22 pm

I'm with you Risa! I am so sick of the pain. I am worn out! Migraine pain is the worst but then I have had tooth pain for 6-7 weeks hard and both my achillies and my kness. I really need to lose weight but the migraines take all my energy. I really wish someone somewhere could find us a cure!

kimsmom

ps---PF I am thinking of you. Wishing you better days ahead. I do like your attitude.
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Post  7777Trinity Fri 05 Oct 2012, 7:58 pm

We all need a break from the pain...I agree. I am hoping that a cure will be found but really not expecting one. The pharmacuetical companies make too much money off us to allow one to actually be put on the market.

That is the sad sick truth I think.
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Post  kimsmom Wed 10 Oct 2012, 6:50 am

Ohhh I so agree with you 7!

Such a shame!
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Post  Greeneyes Wed 10 Oct 2012, 11:40 am

I've missed you guys..haven't been on here lately or the computer in general. My migraines have been really bad.

My oldest son graduated from high school in May... Now, my baby is a sophomore in high school..Yikes, feeling old now.

Erik and I have been married for 10 years now..together 11.

That's about it.

Love you all..my migraine angels I love you greeneyes

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Post  Cluelesskitty Thu 11 Oct 2012, 4:14 pm

Good to see you, Wendy dear!

Congrats on the 11th wedding anniversary!
It's a blue or yellow color and the symbols is steel, favorite scent, the flower a morning glory, for gift it's now a fashion jewelry Smile

Hope you guys an an wonderful, enjoyable day!

Also, a heartfelt congrats to the graduate son!! a sophomore, woohoo!!

You will never be old, Wendy!! Wendy-ies never grow old, don't you know that!! Smile


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Post  Porsche Fan Sat 13 Oct 2012, 12:06 am

hi greeneyes,

good to see you post.

take care.

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Post  Greeneyes Sat 13 Oct 2012, 12:53 am

Thanks Risa Smile..you are so sweet I love you

PF..I'm again so sorry all that you are enduring..you are too nice off a young man to be dealing with this. We all love and care about you here. Take care friend.. Very Happy

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Post  milo Sat 13 Oct 2012, 9:00 am

I'm going to go crazy today. I have an eight page paper due as a mid term exam on a very complicated subject and i head to the dentist in about an hour to get work done. I have to go back again four hours later as well. Then I need to deal with all the pain and finish this horrible paper. Ugh. Good times!!!!! lol!
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Post  Greeneyes Sat 13 Oct 2012, 4:33 pm


Oh Milo..I'm so sorry! Hoping that you feel better soon...thinking of you! I love you

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Post  Porsche Fan Sat 13 Oct 2012, 10:39 pm

hey greeneyes,

glad to hear from you. thanks for the kinds words, and right back at ya.

-pf.
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