Hurting again

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Hurting again

Post  KimbaK on Sat 21 Sep 2013, 8:40 pm

I am in abject misery. Nothing works long term and even the brief respite I get from the migraine seems to make the pain that much worse when it floods back in. After that horrible debacle at the hospital last week, I just can't make myself go back. I just doubled my dose of at-home meds and if nothing else, it will knock me out. I just have to be careful to not sedate myself too much.

I just wish I could break it. This is really pushing me to the breaking point. Only what's the breaking point and what happens then? I'm tired of hurting. I'm going to make my night-nights now. Time to cut the lights and try to sleep this out.

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Re: Hurting again

Post  Sara79 on Sun 22 Sep 2013, 12:31 am

Huge Hugs! I'm so sorry that you're hurting so much. Take care of yourself.

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Re: Hurting again

Post  Platypus on Sun 22 Sep 2013, 4:02 pm

I'm sorry Kimbak. Hope you get a respite soon. Doubling the meds sounds like good idea Cool 
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Re: Hurting again

Post  7777Trinity on Sun 22 Sep 2013, 6:40 pm

Kim
So sad that you are going through this....I have been in the slammer for days now, horrific pain and I just can't seem to break it. Relpax, Fiorinal, Stadol, phenergren and the Monster just keep clawing away at my head. I ice packed my head for 3 hours and put a cold wet washcloth over my eyes and forehead, the combination of all which finally helped somewhat.

I am heading for bed soon too. Hoping that you wake up in the morning with no pain.

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Doing ok, but still hurting

Post  KimbaK on Mon 23 Sep 2013, 12:16 am

I kept hoping I'd sleep this off, but its dug in deep. It is exhausting. I guess the radioablation must have helped more than I realized. I haven't hurt this badly nonstop in a long time. I've had pain, but its been more manageable and/or less intense I guess.

At least this is the school year. I can get my munchkin off to school then return to my silent suffering. It just really drains my ability to live life outside of my bedroom.

Here in Texas, we are finally having cooler weather and its great, but the changes are killing my head.

And that's enough of that. Pity party, table for one.

Good nite!

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Re: Hurting again

Post  7777Trinity on Wed 25 Sep 2013, 4:29 pm

Hey Kim
It's been a couple days, hope you are doing better. I am still getting crushed and wondering what the heck is going on???
I can't wait til October 9th gets here!! Pain Management appointment and praying for a treatment plan that will give me more than just survival mode living Smile

Hang in there and you can call me anytime okay, I will pm you my number.

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Re: Hurting again

Post  Platypus on Fri 27 Sep 2013, 2:11 am

Hope you guys are feeling better. Thinking of you.

-Platy
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Re: Hurting again

Post  7777Trinity on Fri 27 Sep 2013, 6:23 am

Platy
Thanks...yesterday was 8 days straight of migraine. Woke up at 2:30 this morning with another....if I can just make it to Lexington for Pain Management appointment October 9th, my hope is for a plan for better control of the Monster.

Hope you are doing okay too.

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3 am pounder

Post  KimbaK on Sun 29 Sep 2013, 4:28 pm

I'm still hanging in an holding on. Got a bit better for a while, but now I'm back in the zone. I let my daughter have a sleepover with her friend. I'm glad she has someone to hang out with when I'm off in pain.

The kids were great. They stayed up late, but I was ok with that. I'd had mid level pain all day, but you just grin and bear it sometimes. About 3 am as I'm ready to doze off, BOOM. It was like getting sucker punched in the head. I did not expect it to ramp up like that.

I ended up nauseous and just huddled up in the fetal position. Took 2 hours before I had any kind of lessening of pain. Got through the day, but Im just wiped out. I don't have any energy. I don't want any either.

Hope all is well with everyone else. I appreciate the messages and support. My mother is in the middle of a temper tantrum and not easy to manage right now. Love her, but she needs to get herself under control.

Love all!
Kim

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Re: Hurting again

Post  7777Trinity on Sun 29 Sep 2013, 6:55 pm

Kim
This may sound rude, but if your Mother cannot be supportive of you and she doesn't live with you, she needs to stay away until her attitude improves. That means you would have to suck up the courage to tell her that.

You have enough on your plate without inconsiderate family members adding to the pile! Smile

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Alive and kicking

Post  KimbaK on Thu 03 Oct 2013, 3:39 pm

Wow, what a day. I had a pain management appt. My daughter had a tummy bug and stayed home today. Since we live with my parents, it was ok. I put on a video and she watched movies while I went to my appt.

I was tired: she was up late and I am not sleeping well at all. I didn't even put on make-up or do anything with my hair. The staff was so nice today. I had several comments about my appearance and how they hoped I feel better soon. I actually didn't feel that bad, but apparently I looked like I did. I guess I should try this look more often if I want sympathy.

Trinity, thank you for all your support. I haven't been on line or on my phone in several days. I just haven't had the energy to get up and move around. Texas weather: if you don't like it, just wait 5 minutes and it will change. The barometric pressure is giving me hell.

I have found a mini-solution though, by accident. I have been on 15 mgs of morphine ER for about 6 months. I take it 3 times a day with Oxycodone for breakthrough pain. It keeps me going although it is not totally effective. But... I accidentally took 2 of my morphines at the same time yesterday and went nite-nite. I slept. Like a baby and woke up feeling so much better.

That's all I ever wanted. To be able to sleep during a migraine. No one will tell me this is an ideal treatment plan, but I had no problems and woke up easily. Why can't they just let me be a part of my treatment team???

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Re: Hurting again

Post  7777Trinity on Sat 05 Oct 2013, 6:51 am

I hear you on the sleep aspect. I had 18 days of migraine last month and 3 out of 4 so far this month. I got my Xanax back and took 2mgs at night, 3 nights in a row. I slept like a rock and by this morning I feel almost okay. Of course we have a massive cold front coming in with lots of rain and low pressure front, so this may only last a few hours. But, I will take whatever I can get Smile

My husband did something incredible, he called me at home and said "I bought you a new car", I laughed thinking it was a joke. We picked up that car yesterday. Smile Just when I feel I am absolutely worthless to anyone because of chronic migraine and pain, he does something so outrageously sweet I am blessed Smile

I will try to put the picture up here. Guess it didn't work. Oh well.

I hope you feel better today Kim.
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Good for you!

Post  KimbaK on Sat 05 Oct 2013, 10:46 pm

Wow, a new car! He's a keeper. It is nice to have someone who really understands that sometimes our best really is actually getting out of the bed to go to the bathroom without crying. My personal best these days are getting my daughter ready for school so my dad can take her for me. And the next part of what is sad about that is, since I live with them, I can afford to trade my car in every 4-5 years. I just got a Dodge Dart that I absolutely love. I love Dodge vehicles. They just handle so smooth and just look so cool.

Today I dragged out of bed and decided that I wanted to look nice today. I showered, dressed, dried my hair, turned on my straightening/curling iron and did my hair. Make up, too. The curling iron is kind of heavy and bulky so it slipped for a split second and ended up on my right forearm. Not even a second of contact. I have a lovely red stripe about an inch wide and 2 inches long. I guess I don't really register pain unless its super bad. I didn't think anything of it. It really didn't even show until I went outside. The minute the sun hit it, it turned bright red. The kind of red that you just can't miss. And I'm so pitifully pale it really stands out against the pasty whiteness of my skin.

I'm just going to call it my racing stripe. In my race against migraine domination, I am branded in my quest for beauty. And yes, the morphine has kicked in. I feel very wordy. Blah, blah, blah. I better go. I have this overwhelming urge to just babble on, and on, and on. Nothing important, just babbling.

Love to all.
Kim
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