Update and Bad M

Hi All,

I know it has been a few weeks since I posted last, so I just wanted to give a quick update and let you know that I have been thinking of all of you.

The migraines are pretty bad right now. The meds are helping- I am on Nucynta ER as well as Nucynta immediate release for pain. This, klonopin, and benedryl are helping some. I also have toradol shots I can do here. this one hit with a vengeance last week and hasn't really let up much. I have just finished a short course of decadron and that is helping. However, I'm worried it is getting close to IV depakan time. I have been trying to avoid that, but if things don't improve soon, I will call my dr about setting one up soon. I just hate it when the headaches get this bad.

The fainting is about the same. Thought, it is a little worse now due to heat. I saw my GP last week and he has been keeping an eye out for anything that might help. There is a new EP in town. He did say he would call and if check if he would see me. (he wasn't sure, because I have seen another dr in that group in the past and he is not sure the new dr would take me because of this.) But I am glad that he is willing to help.

In good news, I am working on a children's book about Dora. Of course, I have changed her name to Cora in the book. So that is good.

I'd love any suggestions you might have.

Pain free days,
sconesail

Thanks for the update SS. Hang in there!!!

Scone
I know extreme weather always made it worse for me. On the migraine board that Platy posted the link to, I read that taking an antihistamine with decongestant when you know bad weather is coming in, reduces swelling against the tri-mingle nerve that triggers migraine from the nasal area.

I had never been taught that before and wish I had know when a rainstorm, snowstorm or an extreme heat index is expected, to take the antihistamine that has decongestant in it and keep taking it as directed until weather levels off. In Kentucky where I live, our heat indexes were up to 115 degrees for 2 months two summers ago and it was hell migraine wise. Our weather never "eases" into winter or summer, it just a big jump from freezing to roasting

Anyway, its just a new thing I learned and probably wouldn't hurt to try. Since you are in a migraine storm already, it might take a few days.

Thinking of you and praying for you!
Trinity

I never heard that either, but I will definitely try it!
Thanks!

Hi All,

Thanks for the good thoughts and prayers! Same is going out to all of you!

I broke down and asked for an IV of Depakan, my neuro faxed the order and it is scheduled for tomorrow at 1. I am hoping this will give me some much needed relief from the pain.

As to weather I have found that the headaches get worse when the pressure drops. I am in Central Alabama and the weather is never consistent, so I just sort of go with it.

Pain free days,
sconesail