The Fabulous Migraine Underworld
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Post  Cluelesskitty Mon 04 Apr 2011, 2:49 am

https://www.youtube.com/watch?v=-acTFEIH9uk


Highlight the current best practice for drug therapy, and discuss whether complementary therapies
can play a role in treatment.


Don't know if you know it or not, thought it's worth the shot...

Risa
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Post  Cluelesskitty Mon 04 Apr 2011, 3:27 am

... and this is old, but it mentions one of the very good, compassionate Drs- Dr Egilius Spierings.

https://www.youtube.com/watch?v=HxNFFUOevMg
I remember one of former Ronda's girls - Genxgirl, I think - was his patient and adored him, he was so good.

Whatever came of this "surgery"?
I don't recall anybody getting surgeries for M left and right so I don't suppose it was that great of a success.

I think the face lift where the side effect was less M got more coverage than this...?

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Post  Anna's Mom Mon 04 Apr 2011, 1:05 pm

This is one of the docs Ali is always complaining about--one who stole his migraine surgery ideas.

I just looked at posts/links Ali just recently posted at Ronda's, and he is complaining again about this South African doc.

I think Petz'si successful migraine surgery in London was based upon all of this.

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Post  Anna's Mom Mon 04 Apr 2011, 1:10 pm


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Post  Cluelesskitty Mon 04 Apr 2011, 2:55 pm

Do you believe Dr Shevel and Ali's are indeed talking about the one and same thing???

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Post  Anna's Mom Mon 04 Apr 2011, 3:14 pm

My eyes glaze over with Ali...I don't follow it enough to understand it. I'm not a neurosurgeon, LOL! It's too technical. So I don't know how they differ.

Ali has complained endlessly about Dr. Shevel and the doc in Italy. He met the Italian doc in person when that doc visited him in Syria. I doubt he has ever met Shevel. I've seen some exchanges online between Ali and Shevel. Ali posted the exchanges. Wow, were they interesting to read. Shevel doesn't like Ali at all, to say the least.

I think there is something to Ali's theories and practices, but he gets nowhere with it because of his rants.

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Post  Cluelesskitty Mon 04 Apr 2011, 3:22 pm

Really?

Because of Ali dubious "migraine device" = piece of metal half-ring, I always doubt his credentials.
Maybe it's just his poor English that does that, I don't know.

Has anybody ever confirmed he is indeed a legit MD?

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Post  Anna's Mom Mon 04 Apr 2011, 3:26 pm

Here is what Ali is saying:

"I discovered migraine points for migraine (numbers 1 and number 3), and the result is medical journals refused to publish my work but they accepted to publish the work about my migraine points from Doctors who asked my permission to use my migraine points!!!!!!
Do you believe that Professor Cianchetti published his first article about my migraine points without my name!!!!
He told me that he can't publish the article because of my name, so he asked me to publish his first article without my name, and I agreed with this.
Professor Cianchetti is a very good and sincere person, and I'm sure that he said the truth.
When he published his second article he called me by phone and told me that he mentioned my abstract in American neurological annual meeting in his references.
But I don’t know why he published article about my migraine pressure points devices on my migraine points without my name!!! I think its Dr. Hmaidan work."

Professor Cianchetti is the Italian doc. He and his wife went to Syria to meet with Ali and to learn from him. And Ali gave him permission to publish Ali's "ideas," but Cianchetti didn't want to mention Ali's name.

I think Cianchetti came up with his own "migraine device," but I could be wrong. I think Antonella has corresponded with him. Maybe she mentioned the device?

All of this makes me think there is something to Ali's work. I do believe he is a real neurosurgeon in Syria.

I once emailed a reporter who was trying to get to the bottom of who came up with the "ideas" first--Ali or Shevel. This reporter came up with the conclusion that they both came up with it about the same time. But Ali continues to say that Shevel stole his ideas.

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Post  Anna's Mom Mon 04 Apr 2011, 3:27 pm

His poor English and rantings work against him. But I do believe he is a real neurosurgeon. I don't have any way of proving it. Just my gut feeling after following his videos, from what he says, from his internet conversations with Shevel, and from talking with this reporter and so on.

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Post  Cluelesskitty Mon 04 Apr 2011, 4:21 pm

Really! Then indeed, poor Ali.
I suppose being from Syria, a rather small country and not being fluent in English did him in, then.
I feel sorry for him now.

Although, the most damaging is his lack of common sense, I guess.

So many people at Ronda's wanted at first to sincerely help him and warned him against this characteristic ranting of his.
We did warned him, didn't we, it doesn't make him sound credible. Did he listened? Nope.

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Post  Paradox Mon 04 Apr 2011, 4:22 pm

Cheryl, I always had that feeling too, BUT, and huge BUT, one who needed to work a little harder on his bedside manner! Razz
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Post  Anna's Mom Mon 04 Apr 2011, 5:15 pm

You see, here is Dr. C from Italy publishing about migraine devices:

http://www.ncbi.nlm.nih.gov/pubmed/19333203

I'm sure after he visited Ali in Syria.

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Post  Cluelesskitty Mon 04 Apr 2011, 6:49 pm

I still doubt the device works as good as they claim.

Maybe for a lucky selected few.

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Post  Anna's Mom Mon 04 Apr 2011, 7:08 pm

I am doubtful also. I believe in acupressure, but to find the exact right spots on every migraineur's head so that the device would actually help...just too many variables.

And brain pain can be from other causes...not every person with brain pain is a migraineur.

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Post  Migrainegirl Tue 05 Apr 2011, 4:24 pm

Ali is back again. Sigh. I've no idea what his formal medical training is, but he seems to be pretty unhinged. This two things are not mutually exclusive.
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Post  Cluelesskitty Tue 05 Apr 2011, 4:46 pm

but he seems to be pretty unhinged.

Ali - man of steel nerves.
Laughing

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Post  milo Tue 05 Apr 2011, 4:54 pm

I kinda have a soft spot for him. Embarassed
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Post  Anna's Mom Tue 05 Apr 2011, 4:56 pm

He has posted under so many names at Ronda's. My personal favorite was "Solar Boy." Remember that one, Risa? LOL!

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Post  Cluelesskitty Tue 05 Apr 2011, 5:03 pm

Solar Boy -lol
- he does have a bit of a kid in him, ain't he?

No wonder Milo you can't help but kinda feel for the guy.
I suppose most of us have a tiny soft spot for "Syria's Most Unhinged Man'.

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Post  milo Tue 05 Apr 2011, 5:15 pm

He has been here, and I'm sure he will be again. He certainly is determined.
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Post  Anna's Mom Sat 09 Apr 2011, 6:19 am


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Post  Migrainegirl Sat 09 Apr 2011, 5:33 pm

Honestly, the world of research is full of professional jealousies and who had which idea first issues. And yes there are certainly people who do not give proper credit to others and try to purlion their ideas. This may be a case of that, or not. I have no way to know.

My problem is that this is not the proper venue for this debate. It needs to occur in medical journals with medical professionals. We are the patients here. Leave us out of it please Dr. Ali.
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Post  Cluelesskitty Sat 09 Apr 2011, 6:45 pm

Honestly, the world of research is full of professional jealousies and who had which idea first issues.

Oh, yes, especially when the invention or the discovery = big bag of $$$$$$$$$$$$$$$$$$$$$$
even more so that the prestige in the science world.

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Post  milo Mon 11 Apr 2011, 6:28 pm

Research is only as good as the ethics behind it. Smile
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Post  Migrainegirl Mon 11 Apr 2011, 10:14 pm

Actually researchers are far more motivated by recognition than by money. Otherwise they would have chosen a different profession such as hedge fund manager. Very Happy
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