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fighting another bad one- need advice/vent

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Post  sconesail Tue 25 Oct 2011, 6:53 am

Hi All,

I am fighting another bad migraine right now. I am sure it is the horrible post trip/ let down migraine that I tend to get after doing anything big. (I went up to Pensylvania last weekend to meet with the organization about service dogs- more on that later.)

Anyway, the headache is horrendous right now and I just don't know what to do anymore. I am taking my usual combination of meds- tylenol 3, benedryl, klonopin every 4 hours- and it is just not doing the trick. It is just really frustrating. I don't know what to do anymore. I have thought about an IV, but that has not been working well lately. I wish we could figure out a better combo to knock the bad ones down. My neuro is sort of out of ideas. I go the cleveland clinic on the 14th. I will see someone about the fainting, but will alsoo see a headache specialist. I hope he has some new ideas. In addition, the fainting has been really bad lately and frankly I just feel kind of helpless at the moment. I am going to try resting some, maybe take a walk later. The only two things I want to do today are attending the pain support group halloween party this afternoon and Bible study this evening.

I am just so tired of this.

The trip to meet with the service dog people went well. Several of the seizure and the lone cardiac alert dog all seemed to alert to me when I was about to faint. This is good. They did say that if all goes well, I will get a dog this summer during the next class. I am just praying that they can find the right dog.

Anyway, thanks for letting me vent.

Pain free days,
sconesail

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Post  milo Tue 25 Oct 2011, 10:43 pm

I am so very happy that you may be getting a service dog!!!!!!!!!!!

Like....SOOOOOOOOO very happy!

I hope you also feel better soon.

Very soon!
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Post  Migrainegirl Wed 26 Oct 2011, 9:22 pm

The service dog is an excellent idea. And it will lift your spirits when you are feeling discouraged as well. Hang in there. You are on the right path.
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Post  Cluelesskitty Thu 27 Oct 2011, 12:22 am

{{{{{{Hang in there, girl}}}}}

What else can I say today sweetie, except - you are getting the service dog, yay ! cheers


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Post  Porsche Fan Sat 29 Oct 2011, 12:46 am

scone,

wishing you the best. fyi though on cleveland clinic's headache department. they are very, very anti-narcotic, anti-benzo. Their director dislikes them, especially Klonopin.

they push a program called imatch...it's outpatient for 3 weeks IIRC that they wanted me to try. despite 2 other CCF physicians recommending and reinforcing the benefits of Klonopin, they did not care.

you should discuss heartrate variability study. that, i think will give you some good information. the vagal nerve is incredibly powerful and can cause severe syncope.

good luck on the pup!
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